I was recently diagnosed with PCOS and while I had a hard time processing it, I'm ready to share my story and move forward on a journey to starting a family

Being Diagnosed with PCOS

This is one of those posts where I’ve felt like I’ve written it 1000 times – in my head, little notes on the corners of paper, and on my computer – but then deleted, edited, changed, and wondered if I ever would actually hit publish. But I’m done tinkering.

Last month I was diagnosed with PCOS – Polycystic Ovary Syndrome.
It didn’t exactly come as a shock but having the official diagnoses was still an emotional roller coaster. A few months ago I basically knew nothing about PCOS – and now after endless hours researching I’m less in the dark – though I know I have much more to learn. For those of you who do not know, PCOS is a hormonal imbalance disorder that can cause insulin resistance, type 2 diabetes, high cholesterol, high blood pressure, heart disease, ovarian cysts, and infertility – among other less threatening side effects.

And while that whole list is overwhelming, it’s the infertility part that felt unbearable. If you’ve been reading my blog for awhile you know that I want to start a family more than anything. Being diagnosed with PCOS doesn’t necessarily mean I won’t be able to have a baby, but it does mean it’s going to be much harder if I am at all able. Harder to not only get pregnant, but keep a pregnancy.

After my diagnosis I debated back and forth about telling anyone – maybe if I didn’t talk about it I could pretend it wasn’t true. Putting it on the blog was the farthest from my mind at that point. But once I did start to open up about it a bit I realized the main reason I didn’t want to talk about it is because I felt like I wasn’t supposed to. Yes, I have parts of my life I hold close and don’t share, but this didn’t seem like it should be one of them.

Infertility is such a taboo topic, but it affects 1 in 8 couples. And while infertility is a taboo topic, apparently family planning is not. It hasn’t stopped countless people asking me: “Well when are you having a baby?” “Why haven’t you had kids yet?” “What are you two waiting for? Aren’t you even trying?”. If those questions are still being asked then I shouldn’t feel like I need to hide this – especially when it is clearly going to be a big part of my life moving forward.

I still plan on having my general life advice, snark, and random posts – but I also plan on adding in posts about my journey with PCOS. I can’t say for sure how often I will update, but for now I plan on coming back and posting about my initial diagnosis and what our first steps are moving forward.

If you have PCOS, words of advice, or have any questions I would love to hear from you! And if you have friends or family also going through a similar journey, please pass my story along so our journeys can be shared. 

Update: My latest updates about PCOS can be viewed HERE.

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66 Comments

  1. I’m so sorry to hear this!! I hope you get good medical care and they help you!! ❤️

  2. So sorry to hear that. I’ve heard so much about PCOS lately and I’m glad you decided to share your journey. Sending you lots of prayers + hugs, friend! XO

  3. I can totally relate firsthand to what you’re going through! When I was diagnosed with endometriosis I was like, I have what?! It’s so scary to go from being “healthy” to having a condition that might challenge your ability to have children. Hang in there! I’ve heard great things about being able to manage PCOS with nutrition. Check out the autoimmune paleo diet 🙂

    • Thanks Anna, I’ll have to look into that diet some more! I have a friend who swears by it but I didn’t pay too much attention to how it could effect me. I appreciate the reminder 🙂

  4. Thank you for sharing! That can’t be easy to deal with i’m glad that you decided to blog about your journey. Not only will it be therapeutic for you but it will also help other. Good luck girl!

  5. Oh Alexandra, I’m so sorry to hear this! I’m sure it’s been a stressful and scary month. As for people talking about family planning – I will never understand. When i was pregnant with Ryan, people would ask me if he was an accident, and with this guy the same thing. A week or two after I had Ryan they were asking when number 2 was coming. (What?!?!?!) and now I’m already being asked about number 3. People are crazy and rude and just stupid.
    As for PCOS, I have no advice, but I can only imagine the stress and scaryness. If you ever need anything, please feel free to reach out – while I don’t have any experience, I’m a pretty good ear! I hope all works out well for you and your family!

    • Thanks Morgan! I still can’t believe people have the balls to ask if a pregnancy was an accident or not! What good comes from that question? It seems like there are rude and dumb questions no matter what side of a pregnancy you’re on.

  6. You know I’m here for you! Proud of you for hitting publish on this post 🙂

  7. im so sorry to hear that–thank you for sharing such a hard thing. I’m sure so many women will be helped in the simple fact that they arent alone.

  8. I can absolutely empathize with you- I have an autoimmune disease. I, too, remember thinking that if I keep it to myself, then it won’t make it true! Well, we both know that’s not how it goes haha!
    I believe dealing with things such as this puts us on a path we need to be on. I’ve learned so much about health, diet, and nutrition as a result. I wish you all the best!!!

  9. I spent 9 years living the hell that is unexplained IF, chronic m/c and infant loss and met many with PCOS along the way. I’m sorry to hear about this dx but know there is plenty of hope. It will be a different road for sure, but I know you can get through this. I’m so sorry you’re getting those ignorant, probing questions. Sigh. Here for you my friend. xo

  10. Sorry to hear about this diagnosis, Alexandra. PCOS is something you may have, but it doesn’t define who you are! Thanks for sharing, you are not alone.

  11. I am so sorry you’re going through this. Know that I am praying and thinking of you!

  12. Hugs!!! I’m sorry to hear this, but it will only make you stronger and you will be a mom one day! It’s amazing what science can do so please please have faith. I’m here if you ever want to talk.

  13. Sorry to hear about your diagnosis. Stay strong and know that you have support!

  14. I’m so sorry to hear this, especially since I know you want to start a family. I hope now that you have the diagnosis, you can find ways to help and get support. I’m here for you if you ever need to talk.

  15. Tennille

    I found your post on Pinterest tonight and wanted to give you a few words of encouragement. I was diagnosed with PCOS in February 2009 just 4 months after getting married. The doctor told me to give up on ever having children and showed me the door. I got a second opinion and with his help began treatments. We did 6 months of Metformin, it didn’t work. I took a short break and then in November did a round of Clomid. I discovered I was pregnant with my first son December 3ed. He was born in July 2010. My second son was conceived 12 months latter naturally. Today my husband and I are expecting twins due (9/18/16) with the help of a single round of Clomid.

    I have shared all of this to tell you if you want a family it is possible even with PCOS. Good luck!

    • Thanks so much for the kind message Tennille! I’ve started a similar process but haven’t had as quick of results as you – but I’m trying to keep up hope! I’ll be posting about what I’ve done so far soon. I really appreciate you sharing your story and a huge congrats to you on the upcoming twins!

  16. *hugs* thinking of you… such an upsetting diagnosis. 🙁

  17. My sister has PCOS and is the mother of four now. It may take some trial and error and time, but it can happen! good luck!

  18. I’m so sorry to hear this! I know it was not easy to share but it’s a topic that will help other women out there experiencing the same thing. Stay strong! It will happen!

    Jill
    Doused In Pink

    • Thanks Jill! I figure if I’m going through it I might as well share and try to connect and help others as well 🙂

  19. Sabrina

    I too, about a month ago, have recently been diagnosed with PCOS after several years of tests which originally ruled out the option. It wasn’t a shock to me as it explained a lot but I am still struggling to come to terms with the fact there is a small chance I will be able to conceive or even carry a baby. I would love to talk to you more about this as I could do with all of the help I can get and maybe we could figure things out together. I’d love to hear from you xx

    • Hi Sabrina, I’m sorry to hear that! It’s always a mixed bag of emotions when you finally have answers but they’re from a not so great outcome. I’d be happy to chat more – I don’t see any contact information, but feel free to email me!

  20. Anna

    I was diagnosed with PCOS years back, but I did not take it as a negative thing. It happens to many women is what the doctors told me. And lucky me it fixed itself and I have 2 children naturally. My GYN calls me her poster child.

    • That is wonderful that you were able to correct yours naturally! I’ve heard some women can do so, but it usually takes years – my goal is to try for that way with a second, assuming we can get pregnant with help for our first 🙂 We’ll see!

  21. Bekah

    I was diagnosed last month too!!! I am on the same journey as you, and what a blow it has been! It’s a hard thing to talk about so thank you for sharing 🙂

    • It’s great to meet others on the same path but also so sad how common this really seems to be! Thanks for stopping by and I hope you continue to follow along and let me know how you’re doing as well!

  22. Nicole

    Have you heard of Melissa Ramos? Google her blog or her private sexy lady balls community on Facebook. A lot of the girls she works with have PCOS (including her) and she talks a lot about it and how to overcome systems with food therapy. A bunch of girls on her protocols are now getting pregnant and have completely shrunk their cysts etc. It would definitely be worth checking out and connecting with other girls that share in your journey. Good luck!

    • Thanks so much for the recommendation – I will look her up! Also, it cracks me up that this immediately was flagged for spam haha

  23. Leer esto me lleva al pasado, hace 2 años perdí un bebé y luego me descubrieron quistes en los ovarios. Esto es algo demasiado tedioso nunca estás segura de que pueda pasar y afecta tu autoestima un poco, por suerte hay tratamientos que te pueden ayudar. Espero que de verdad mejores esto y puedas tener esa familia que anhelas. Dios te bendiga, un abrazo

  24. Victoria

    Hey there, have faith! I have PCOS (found out in 2010, diabetic since 2009) and found ‘natural solutions to pcos’ by Marilyn Glenville incredibly helpful! It goes into diet, exercise and supplements and after readjusting my diet a little and losing a little weight I have caught naturally. It took 2 years of trying but I’m expecting in 4 weeks! Stress is also a major component; we were put back on the fertility waiting list to start cloramid at the end of July and I’d caught by the start of August. I was terrified of miscarriage as I also have a heart shaped womb but apart from having to go on insulin from 28 weeks I’ve had a breeze of a pregnancy! Hopefully this gives you a little hope that it’s very possible and best of luck to you!

    • Thanks so much for sharing your story! It always makes me happy to hear success stories and of course gives me a little boost of hope as well. Best of luck to you with your growing family and a huge congratulations!

  25. All my love and healing power. I hope you pull yourself mentally and emotionally too.
    I like the opening prose.
    God Bless, (:

  26. ow.. I’m sorry to hear this, so sad… but you must stay strog and stay positive, I know you can do that! Thanks for sharing this.. love <3

  27. Ohh, I am so sorry to hear that 🙁 It’s hard to talk about and I understand it’s not an easy task to stay positive, but I wish you to be strong and fight! Pray for you!

  28. I am so sorry to hear about your diagnosis. I know what it’s like to have your entire life change because something is wrong and you don’t quite know what it is and then facing reality when you figure it out. All I can say is stay positive and rely on those around you to help guide you. You will get through this!

    • Thanks Courtney! I am trying to focus on the positives of at least knowing what it is now!

  29. All I can say is: stay positive and strong! Sending a lot of positive vibes! Have a nice new week! <3 Kisses!

  30. Ana

    I feel sorry for you! One of my friend was suffering from PCOS since last few years and she got operated last month. Now she is doing fine!

    • I’m glad to hear your friend is doing better! It’s crazy to me how common this is – I never knew before!

  31. I really wasn’t aware of this condition and I’m sorry it has reached you, but I think that talking about it is the right thing to do. By talking, you get clear ideas for yourself and you bring awareness to other people – someone out there might have it too and have no idea what to do either.
    Thank you for being brave and sharing with us!

  32. I have suffered from pcos for years.
    I have no advice to give.
    As I was lucky enough to have three children. I stopped after three. Each born early. As two I almost lost. I couldn’t handle the havoc it was playing on my emotions.

  33. I was diagnosed with PCOS and then later a pituitary tumor about six years ago. This may sound crazy but I was happy when it was detected. My body felt weird and all tests from my kept coming back negative. The most challenging thing has been maintaining my weight and I decided to become vegan to help me with that. Best of luck to you.

  34. I’m so sorry! It can be overwhelming for sure. I was diagnosed at 22, and while getting pregnant wasn’t a walk in the park, I have two beautiful, healthy kids, and two totally normal, uneventful pregnancies. So I know it’s possible! Keep reading and educating yourself on it!

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